Just a reminder that May 12, Fibromyalgia Awareness Day is just around the corner.  The NFMCPA website has great information and resources regarding event creation and execution.  Here are a few things Walk-to-CURE-FM-event-kit-with-shadow-500x575you can find on the 2014 Fibromyalgia Awareness Day Page:

     ⦁    Listing of events both nationally and internationally; check to see if there is one near your vicinity
     ⦁    Fibromyalgia Awareness Day Event Forms
          1.    External Events Forms – Documents to fill out and submit that enable your Fibromyalgia Awareness Day Event to be posted and promoted on the NFMPCA Website and other media
          2.    External Events Fundraising Forms – Documents that explain how you can utilize the NFMCPA 501 (c) 3 non-profit designation when you plan a fundraiser on behalf of the NFMCPA
     ⦁    How to get your FREE NFMCPA Awareness Event Kit
     ⦁    Walk to CURE FM
          1.     Information about the Columbus Ohio Walk to CURE FM
          2.    Information about how to create a walk in your local community
     ⦁    Other Fibromyalgia Awareness Day Event instructions and information including:
          1.    Community Picnics
          2.    Health Fairs
          3.    Mall and other public places; promotional ideas and information
     ⦁    Proclamation and Resolution Program including instructions and sample letters for local, state and national government agencies
     ⦁    Awareness Day t-shirts and other items available in the NFMCPA store; perfect to wear when promoting fibromyalgia to the general public through walking events or other programs as listed above.  Many sizes, colors and designs to pick from; pre-order to reserve yours!

Dear NFMCPA Friends and Supporters,

If you had a magic wand to make all of your wishes come true, what would be on your list? Walt Disney was the master of creating fairy tale endings, and making wishes come true was his life’s work.
 
As we approach the end of 2014 I am struck by this year’s NFMCPA successes in actively representing and advocating for people with fibromyalgia and chronic pain in a broad variety of settings including:
  1. March 26, 2014 FDA Public Fibromyalgia Patient Focused Meeting in Silver Spring, Maryland;
  2. American Medical Association 2014 podium presentation;
  3. “Access to Pain Medication Survey” published in Practical Pain Management Journal; and
  4. Successful in-person Capitol Hill legislative meetings which influenced chronic pain patient rights to medication bill put onto Senate floor by Senators Orrin Hatch (R-UT) and Sheldon Whitehouse (D-RI)(S2862) after passing the House of Representatives.
These accomplishments support my personal wishes for the people we serve and who live with the effects of chronic pain including:
  • Funding for scientific research to find answers leading to successful treatments and cures;
  • Guaranteed of access to appropriate and affordable care;
  • A better quality of life and wellbeing;
  • Expansion of scientific research to include holistic approaches such as spirituality to encompass the mind and body in healing;
  • Education for healthcare professionals to better help their patients and then in partnership tackle chronic pain together;
  • Eliminate stigmatization against people with invisible illness to return their dignity to them;
  • Participation by insurance companies to support doctors who spend time with their patients to understand their concerns so they can help them; and
  • Restoration of hope and joy to people who are lost in despair and anguish.
If only I had that magic wand to make these wishes come true immediately!  What I do have is each of you. By giving your generosity throughout the year, you help make these wishes come true. No fairy godmother comes to our aid, but our united efforts to help ourselves and others with chronic pain will ultimately succeed in winning the individual battles we tackle every day.  
 
To help make YOUR wishes come true, please make an end-of-year, 2014 tax deductible donation to the NFMCPA. Your financial support helps to ensure that advocacy and protection of your healthcare rights continue and that resources to help you find answers to your chronic pain conditions are protected and remain intact. Please click here to donate.  Thank you!
 
It’s still not too late to "Wish Upon a Star" and make a 2014 tax-deductible donation to the National Fibromyalgia & Chronic Pain Association, a 501c3 charitable, nonprofit that provides fibromyalgia and chronic pain support, advocacy, resources, and awareness of millions of people who suffer with invisible pain conditions.  Join others in the fight to help yourself and others with fibromyalgia and other chronic pain conditions.
 
My personal wish for you is a pain free and joyous holiday season,
 
Jan Chambers
 
Jans signature 175x54
 
Jan Chambers, President and Founder

With appreciation for the thousands of caring pain care providers who protect the dignity of the provider patient relationship and work together with their patients to achieve health goals, the National Fibromyalgia & Chronic Pain Association (NFMCPA) is a proud partner of Pain Care Providers Day March 20th.  The NFMCPA invites you to write a note or somehow let your doctor know how much you appreciate her/his tender and professional skills in the face of increased scrutiny over how they practice medicine.

A special note of appreciation to Dr. Pat Murphy of Louisville, Kentucky for representing the many exemplary pain care providers around the world.  (http://jamespmurphymd.com/about/)

An excerpt from "Why I Treat Pain" in Fibromyalgia & Chronic Pain LIFE magazine, Spring 2015:

(The NFMCPA asked guest author Dr. James Patrick “Pat” Murphy for permission to reprint his poignant blog published January 22, 2015 at http://jamespmurphymd.com/2015/01/22/proclaim-pain-care-providers-day/)

Why Do I Treat Chronic Pain?

Another headline today.  Another physician indicted.  I read the phrase “faces life imprisonment,” and it pierces my suddenly fragile psyche like a spinal needle.  My resolve threatens to hemorrhage, figuratively but painfully, leaving me wondering why I do this.  Why do I treat chronic pain?

I’ve seen headlines like this too often.  But I know the doctor in the headline this time. We work in the same hospital. And though I do not know details, I do know that he does not dole out handfuls of pills for cash.  He is not getting rich on Medicaid.  He is merely a solo practitioner willing to embrace suffering people, many of whom are among the most marginalized, downtrodden, and castoff in our economically blighted community. I hope and pray that truth and justice will prevail. But my confidence is fragile.

Yesterday, my fifteen-year-old son and I were driving in the car, and he asked about this doctor because it was “all over the news.” My son knows what I do for a living. He’s heard me lament about how frightening  the heavy hand of regulatory oversight by non-medical types can be for us medical types. I can only imagine how news of another pain specialist facing life in prison must make him feel – how it must make my wife feel, my other children, my parents, my friends, my employees, my patients--all those who depend on me, care about me, love me.

But I don’t dare go into the deep, dark honest place in my heart to ask how it makes me feel. I can’t.  I have work to do. I have “Mama P” in my exam room right now. Despite the indescribably painful metastatic cancer that has invaded her spine, she manages a warm smile, offers me her outstretched trembling arms, and we embrace. She is here, and she needs me. And as my moist tears well up, I realize that, today, I need her. 

And I know, again, why I do this.  And I know what we must do to make sure that she and every other suffering soul has hope. We must let pain care providers feel our powerful and uplifting embrace – the embrace of the fragile people they serve – because, in reality, we are all fragile suffering souls. We all need each other.

PAIN CARE PROVIDERS DAY IS MARCH 20, 2015, the first day of spring. It will be a day to recognize our caregivers from all walks of life who do what they can to ease the pain of others.  Ways to make this day special might include dropping off a nice note for your therapist, baking some cookies for the clinic staff, sending flowers to the person who schedules your appointments, blogging, or writing a letter to the editor in support of better access to effective pain care for all. Unleash your creativity and spread the message.

Please use social media to the fullest extent and tweet with the hashtag #WhyPCPD.

Thank you. I’m feeling stronger already.

Dr. Pat Murphy

elephant sitting on person 256x243Let's solve the problem of the big "elephant in the room" of health care.  Chronic pain affects quality of life and costs U.S. society over $635 billion annually.  About 25% of health care costs and 5% of the U.S. gross domestic product are spent on chronic pain.  

The People's Campaign for Preventing Chronic Pain is helping solve this problem with innovative personalized online Toolkits for training people on preventing chronic pain, and in the process transform health care for everyone. Click here for more information.

HOW CAN YOU HELP?

You can help by encouraging everyone to get their own personalized Training Toolkits to learn how to prevent chronic pain.  Your campaign donation will help to support research, education, and advocacy on preventing chronic pain.  You can help a friend, family member, colleague, health profesional, or even yourself through the Toolkit.  Spread the word.

The Training Toolkit makes it easy for individuals, health professionals, health plans, and employers to learn how to prevent chronic pain.  Online training is less expensive, more effective, and can be used in any clinic, work, or home setting.  In one year, 30,000 people from 178 different countries were trained online in preventing chronic pain.

WHAT DO PEOPLE SAY ABOUT THE ONLINE TRAINING?

  • 93% of participants believed the training changed their life
  • 85% of health professionals believed it changed their care of patients

NOBODY TEACHES US HOW TO PREVENT CHRONIC PAIN

It's true that our current healthcare system is fragmented and inflexible since health systems, health plans, and reimbursements often dictate treatments and thus, little training is offered to patients.  Health care can become more health-oriented, but only when people demand it.

Billions of dollars are spent on amazing advances in pharmaceuticals, devices, surgeries, and other innovative treatments for pain conditions which often fail to deliver long-term, successful relief.  This is primarily due to the lack of engaging, empowering, and educating patients in simple self-management strategies to reduce risk factors and enhance protective factors that will prevent chronic pain.

 

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