December 2012 Newsletter

 

Volume 2   -  Newsletter 7                                                                                                                            December 2012 

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Possible New FM Medications Being Researched
 
Beginning in 2007 the FDA approved three medications for fibromyalgia:  Lyrica, Cymbalta and Savella.  Several other medications were either ready to be submitted to the FDA for approval or in various stages of clinical trials, but were either not approved or shelved by the developing pharmaceutical companies.  Since early 2009, when the last drug, Savella, was approved, new FM medication development seems to have fallen by the wayside.  The NFMCPA recently began the process of tracking down any new information concerning medications in order to update our constituents about possible scientific trials and new directions in fibromyalgia drug development . . .  read more 
Send Dr. Oz your Fibromyalgia Questions.
 

On an upcoming show (date has not been announced) Dr. Oz and a panel of experts will be addressing fibromyalgia.  He wants to hear from you! Submit your Twitter question @DrOz with #OzFibro   

 Submit your questions with hashtags and hope the panel of experts includes at least one major fibromyalgia medical expert.  It will be great if Dr. Oz is able to give a more realistic view of fibromyalgia and illuminate the fact that more research is needed along with better medical education so doctors know how to diagnose and treat this illness.

New Survey  - Web-based Programs
 

The *Vulvodynia Association is conducting a brief suvey on pain patients’ willingness/interest in using web-based programs and mobile apps to track their pain symptoms and quality of life measures. Please consider completing their super-short survey . . . read more

Congratulations to Peter Waite, Founder of Living Well - For Running a 5K Race
 

Peter Waite of Salt Lake City, Utah never expected to run a 5K race. In fact, he never expected to run again in his life, period. Having battled chronic illness for 17 years and suffering a serious leg injury 10 years ago, running wasn't even on his mental radar. Over the years just walking had been difficult for him. So you can understand how unimaginable it was for Peter to believe that he could ever be fit enough to run 3.11 miles. But he was, and he did . . .  read more

Upcoming Articles in
Fibromyalgia and Chronic Pain LIFE
 

Here is a glimpse of some of the informative, newsworthy articles you will find in the newest edition of the NFMCPA Fibromyalgia and Chronic Pain LIFE magazine. 

Laboratory evaluations in fibromyalgia – some new considerations - by  Patrick Wood, MD
  
In this informative article, Dr. Wood discusses lab work that should be considered for people with fibromyalgia to rule out deficiencies that might be helped by supplementation.  This thought provoking article expands current scientific knowledge to encompass a new concept of thinking by tying in cervical spinal cord compression and its influence on lab test outcomes . . .  read more

NFMCPA President and Founder Jan Chambers 
Recipient of the IDA 2012 Impact Award
 

On October 14 at the Denver Marriott South in Lone Tree, CO Jan Chambers the Founder and President of the National Fibromyalgia and Chronic Pain Association was presented with the Invisible Disabilities Association’s (IDA) Impact Award at the annual Honor Awards Banquet and Auction.  Jan and eleven other recipients were chosen for their inspirational stories of making a difference in the lives of those living with illness, pain and disability. Every year since 2008, the IDA has recognized individuals and organizations making a difference for people living with invisible disabilities . . . read more
NFMCPA AT PAINWeek 2012
 

The NFMCPA exhibited at the 2012 PAINWeekmeeting held at the Cosmopolitan in Las Vegas, September 4-7.  Jan Chambers manned the booth and handed out FM educational materials to attendees who stopped by for information. PAINWeek is the nation’s largest pain conference for frontline clinicians with an interest in pain management. Over 1500 physicians, nursing professionals, physician assistants, dentists, pharmacists, and psychologists attended this year. More than 100 hours of continuing medical education was presented including sessions on: behavioral pain management, complementary and alternative medicine, emergency medicine, health coaching, hypnosis, interventional pain management, medical/legal, neurology, pain and chemical dependency, pain and palliative care, pharmacology, regional pain syndromes, rheumatology, and sex and gender differences in pain management. Over the next few months the NFMCPA will report on some of the important programs that were presented at this year's meeting.  Watch for these informative updates.

 
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Thank you to our sponsors and donors for helping us keep information free and available for the public. The NFMCPA is a not-for-profit charitable 501c3 organization. Please consider a tax-deductible donation today to continue access to advocacy, education and awareness for our community. 
THE NFMCPA WANTS TO HEAR FROM YOU 
Send your inspirational stories about overcoming fibromyalgia and chronic pain pain to: This email address is being protected from spambots. You need JavaScript enabled to view it. 
OR 
If you are a support group leader or attend a local group, please send us the contact information for posting on the NFMCPA website to This email address is being protected from spambots. You need JavaScript enabled to view it. 

ADVERTISER & SPONSORSHIP INFORMATION 
Please contact Jan Chambers at  This email address is being protected from spambots. You need JavaScript enabled to view it. 

Or contact the NFMCPA office at 800-200-3627

    
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National Fibromyalgia & 
Chronic Pain Association 
31 Federal Avenue 
Logan, UT  84321
 

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