Pain is Real Blog
Perspectives on life-altering pain. Current issues, purposes and consequences of pain relief policies, guidelines, and laws affecting the accessibility of safe, effective, and affordable health care.

Marla K. Taylor (October 19, 1946 - March 18, 2013) Marla suffered from fibromyalgia long before it was officially diagnosed. Eventually, she had to leave her secretarial job and take disability, but she refused to quit working until she absolutely had to. She was a very gifted crafter and artist, but again, fibro forced her to give up those hobbies. She only did activities that were "worth the pain." Mostly she refused to give up her grandson's school programs and special events in my life. Never once did she whine or say "Why me?" Even when she was diagnosed with two types of cancer which eventually took her life, she lived ... and died... with courage and dignity. And in the end, she asked that her memorial money go to the National Fibromyalgia & Chronic Pain Association so that others might not have to suffer like she did. Written by Marla's sister, Mary C. Taylor
“Tom,” as many of us knew him, once had a thriving career in sales before he was struck down with what is known by many as chronic fatigue syndrome and chronic Lyme’s disease. However, Tom never stopped his tireless advocacy for those suffering from invisible illnesses that cause disability and hardship. So it is only fitting that we give tribute to a great advocate. Tom was a go getter, a blunt speaker, but proficient. He used his voice, time and talent to raise awareness even though he suffered and struggled like so many of his peers in the world of chronic illness. He fought for recognition of chronic immunological and neurological diseases including, myalgic encephalomyelitis/CFS, fibromyalgia, multiple chemical sensitivity, Lyme’s disease, Gulf War Syndrome and other overlapping disorders he felt deserved awareness. Tom was not only proficient, he was highly intelligent, and never missed a beat. Some might call him crass, but all would agree he was effective. He chose his battles well and used his disdain for the way people were treated. He used his anger regarding the ignorance and complacency of many as fuel for his mind, even when his body was failing him. When he could, he…


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