Sept-Oct 2015 Newsletter

 
 
September- October 2015

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& Chronic Pain Association  
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APP OF THE MONTH
Sleep Genius
Created by the world's leading authorities in neuroscience, sleep, sound, and music
Used by NASA to help astronauts get to sleep in space. The linchpin to reclaiming your sleep health? Finding your perfect bedtime, and keeping it consistent. 
Learn more....  
Try something new and join the fun!
NFMCPA Twitter PainChats monthly on the 3rd Tuesday
 5:00-6:00 pm EST  #painchat
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Live In-Person Conference & Live Stream October 8-10, 2015 Exciting and Inspirational Speakers Science Self-Management Workshops Tickets available now! www.paintap.org

Looking for Fibro Facts? eyeglasses-black-and-orange-outline 100x61 Click here to learn about symptoms, diagnosis, science,  treatment ...
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EASY LIVING
Join #NPSChat GIVING TUESDAY TWITTER CHAT ON DECEMBER 1st
  You won't want to miss the "Give Your Best Tips for Enjoying the Holidays" Twitter Chat on Tuesday, December 1 at 2:30 PM MST.   Bring your secrets for less stress and finding joy in the holidays.  #BestTips  International GivingTuesday can be about donating to your favorite charity or contributing your best tips to others on the Giving Tuesday Twitter Chat. 
LIVE STREAM RECORDINGS OF 2015 TAP CONFERENCE NOW AVAILABLE!  
Together health professionals and patients learned cutting edge science, novel treatments, and skills during the successful, innovative 2015 TAP Conference.  Sleep, neck pain, nutrition, myofascial and occupational therapy, parenting, exercise and self-management skills are just a few of the topics covered.  The NFMCPA is delighted to announce that TAP C at paintap.org! Read more about the conference...

STAY INFORMED

Would you like to receive email alerts about events that affect your access to care and medications?  Your voice matters on state and federal legislation as well as pending changes in federal policy about chronic pain care.   Together we can make a difference!  

Please click here to register your email address for an email alert about calls to action and future surveys.  
NEWS FROM THE RESEARCH FRONT
Brain White Matter Abnormalities in Women with IC/BPS
woman in pain Recent research showed women with interstitial cystitis (IC) and bladder pain syndrome (BPS) exhibit numerous white matter abnormalities that correlated with severity of pain, urinary symptoms, and impaired quality of life.  Read more...

MSG and Aspartame Increase Fibromyalgia Symptoms
Kathleen HoltonDrs. Kathleen Holton and Kim Jones and their research team members found that clinically significant symptom improvement was reported by 84% of the participants who completed the four-week diet in their research and suggests a diet free of excitotoxin is not only feasible for individuals, but that it improves symptoms of FM/IBS.  This indicates excitotoxins may evoke symptoms in some FM/IBS patients.  Dr. Holton will present their findings at the TAP Chronic Pain Conference.
GET INVOLVED
15 Science Lectures and 10 Workshops at the TAP Chronic Pain Conference? Who are the speakers? 
TAP Conference Speakers
Topics include:      
Myofascial Pain Self-Management Trigger Point Imaging Before and After Treatment Fibromyalgia and the Neck Mindfulness, CBT and Symptom Reduction Optimizing Nutrition Exercise and Nutrition Living and Buying with FM and Chronic Pain ADA Regulations Workshop Small Fiber Neuropathy Alternatives to Opioid Medications Read more...

 People's Campaign for Preventing Chronic Pain 

Online Toolkits are helping train people to prevent chronic pain.  More than 35,000 people have taken the program: 93% believe the training changed their life; and 85% of health professionals believed it changed their care of patients.  What are this innovative personalized online Toolkits?  How can you help?
HEALTH RESOURCES
Painful Truth: What Chronic Pain is Really Like &  
Why It Matters to Each of Us
In an interview with NFMCPA President Jan   Chambers, Dr. Lynn  Webster said, "The book Painful Truth introduces nine former patients of  mine, illustrating their unique situations as their lives were suddenly  torn apart by daily chronic pain. 
My goal is to help readers understand the uncomfortable realities  faced by people in pain. The goal is to ensure that treatment of  chronic pain is seen as a human right, and that an array of treatment  options are available to readers on that inevitable day when that they,  too, will seek relief from humankind's primal enemy: pain." Read more...

Sharecare Launches Health Advocate Intitiative 
 
Sharecare is  launching a new "Health Advocate" aimed at helping people gain  insights  and information to their chronic pain care issues.  Health experts will serve as host, guide, leading voice.  The NFMCPA is proud  to invite you to their Sharecare pages to ask your questions.  A wealth  of knowledge and experts await.   Read more...  
INSPIRING PEOPLE TO KNOW
SUPER BOWL CHAMP DOMINIQUE EASLEY 
TACKLES FIBROMYALGIA FOR HIS SISTER  
In 2015 the National Fibromyalgia & Chronic Pain Association announced their campaign theme of "Your Voice Matters:  Make Fibromyalgia Visible."  And that is exactly what he is doing for his sister, DestDominique Easleyinee.  As a loving big brother, Domonique developed a new fan base when he began to use his football fame and popularity to help spread awareness about FM, hopoing one day a cure will be found for his sister and others living with this terrible disease.   Read more...    
ADVOCACY UPDATE
It's Not Too Early to Start Planning for a
2016 May 12 Fibromyalgia Awareness Day Event
Celebrate - what you have overcome and the simple successes you have each day
 
Remember - those lost to the disease and honor people who have fought or are fighting fibromyalgia and chronic pain
 
Fight Back - inspire people from all over to take action against a disease that has taken so much
   
Looking for a holiday gift    
for someone special?   Many t-shirt designs and 7 sizes to choose from
 
Planning an Awareness Event?  Check out group rates on our T-Shirts!
Your purchase helps support the advocacy and free education work of the
National Fibromyalgia & Chronic Pain Association.   Thank you for helping us continue our mission.

Copyright© 2015 National Fibromyalgia & Chronic Pain Association (NFMCPA)
The National Fibromyalgia & Chronic Pain Association is a charitable, nonprofit, 501(c)3 tax-exempt organization.  Donations are tax-deductible as allowed by law.
Disclaimer:  Please consult with your physician for medical care and treatment. The information in this newsletter and website is not a substitute for professional medical advice. 
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