It is deafeningly loud! It sounds like . . . silence.
That is what patients, healthcare providers, people in the general public, government agencies, industry, and especially the researchers hear when the word "fibromyalgia" is said. Who needs to be involved to increase the awareness of fibromyalgia? YOU.
What is it? How does it affect people's lives? How do you get it? How do you diagnose it? How do you treat it? Who treats it? Where do you go for help? Who is funding scientific research? Where is the voice to carry the message and to stimulate interest and to speak on behalf of millions of people with fibromyalgia?
The National Fibromyalgia & Chronic Pain Association (NFMCPA) is that voice. The NFMCPA is the organization tracking what is happening in research, access to care, and offers resources to answer all of these questions.
The NFMCPA website provides the latest information on diagnosis, healthcare professionals, where to find support groups, treatment information and research updates. The Advocate Voice monthly newsletter offers the latest information affecting your daily life. The Fibromyalgia & Chronic Pain LIFE magazine offers more in-depth articles, with many written by the foremost FM researchers and professional experts. May 12th National Fibromyalgia Awareness day activities and resources to help sponsor events worldwide are provided by the NFMCPA.
The NFMCPA's Leaders Against Pain program offers one of the most effective patient advocacy groups in the U.S. and internationally. National surveys created by the NFMCPA address a scope of concerns for people living with fibromyalgia, including access to pain medications, scientific research opportunities, access to care and government agencies' issues, including the Food and Drug Administration and the National Institutes of Health.
The NFMCPA is your organization. Just as the Multiple Sclerosis Society, the Arthritis Foundation, the Heart Association and hundreds of other nonprofits work on behalf of their patient population, that is what the NFMCPA does for you. Take a moment and ponder the importance of replacing fibromyalgia silence with a LOUD VOICE DEMANDING ACCESS TO CARE AND EDUCATION FOR HEALTHCARE PROVIDERS. Think about your future, where you are going, and where you want to finish. The NFMCPA can create that loud voice on your behalf and help change your life. Financial contributions sustain and replenish important fibromyalgia programs, advocacy, resources and helpful information listed above. Your financial support helps fibromyalgia progress and become more visible.
Please make a tax deductible donation to the NFMCPA or ask your friends, family and other supporters to make donations on your behalf to help assure that these programs continue and that silence is replaced with a deafening noise!